Calling All Splenic Hamartoma/Hemangioma Specialists!

Seeking your insight as there is so little literature about this organ on the internet, so I’m resorting to Medium for answers!

Michelle Love

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The spleen is an organ that is often underrated and overlooked because we can “live without it” — but for years I’ve been frustrated about this as I try to find answers to the issues I’m having. Doctors just brush it off and tell me it’s “normal” but I can’t accept that anymore as there is something growing in my body, and I want to heal it.

The back story: Over 10 years ago, I had Clostridium Difficile and was hospitalized twice for it. During that time, they did MRIs and CT scans and discovered a lesion in my spleen to follow up on.

After having had C. Diff from a doctor's error (overprescribing antibiotics for a viral, not bacterial, infection) I chose to take my health into my own hands, and was serious about it.

For example, those MRIs also showed cysts in my liver, and I changed my diet and healed my liver. There are no longer any cysts. It didn’t take long for my body to heal those, which is miraculous and only made me more confident about my spleen healing as well. I got curious.

My spleen has been the one area of my health that I haven’t been able to hack over the last decade, and there is such little information about it that I’m finally starting to write about it. Maybe someone else on here will have some insight as to why the only articles out there basically say that you should leave it and wait, or remove your spleen — which they will only do if the lesion is large enough.

At first, it was thought to be a hematoma, but that was ruled out because of the fact that this lesion has been growing at a few millimeters per year, and it had some enhancement — they keep saying it’s “likely an atypical hemangioma or hamartoma”. Instead of giving a new opinion, each MRI is just referencing the last MRI (I feel like they just do this to deflect blame if it’s something else).

Photo by Leeloo Thefirst: https://www.pexels.com/photo/question-mark-on-paper-crafts-5428828/

Recently seems to be growing a bit more rapidly. It started out around 0.8mm when I first discovered it and it now up to 1.8mm at the largest point.

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Michelle Love

My public journal about all the things I’ve been through & I’m interested in—with the hope that it benefits you. 🤍 Love is the answer